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Hi everyone, my name is Mel, im 35 & have struggled with serious M.E. or Chronic FAtigue Syndrome & Fibromyalgia for 7 years now. My symptoms first came up when living in London (im now in australia), a few months after a HUGE amount of amalgum work in 2000. All over body pain, tinitus severe gut disturbance, parasites involvment etc followed. Night sweats and the myriad of anxiety panic & visual disturbances that went with it all especially in the first 5 years. I was bedridden & housebound for much of that time. Eventually slowly removing my 12 fllings (finished mid 2005), and having treatment for parasites has put me on a recovery. BUt i am still far from normal with the raging tinitus and FMS pains everywhere, sleep disturbances & still painfull ibs & underweight. Fatigue & constant viral infections have recently improved though.
So my instincts tell me i now need to chelate as all my previous attempts at IV vitamin c, high levels of glutamine/thone, high potency amino acid whey protien suppelements etc all gave me truly frightening reactions!! I can only condlude my toxicity levels with bacterial parasite & hg was just too damn much for me to cope with!! So for a while i just wanted to stop & try to reconnect with life & go out & try to socialise & have some fun. BUt i cant seem to get onto the next level, so am due to have an appointment with my alternative practitioner about chelation. I already know from hair tests im Hg toxic.
Ok, so basically im terrified of DMSA etc. Ive read so many horror stories that i almost dont wanna do it!! CAnt i detox with natural supplements & AHA? What id really like to know does this REALLY work? Have people here felt real & worthwhile benefits from DMSA and ALA? If i start this ill be starting reeeeeeal low.. as im super sensitive- & quite frankly have enough trauma already lol! Also im finally starting part time study again soon & dont want to disrupt this so badly so figure go gently & real slow?
Your opinions experience & advice would be a godsend! many thanks : )

Hi Mel. Welcome to the forum. Seems like you have had quite a journey getting here.

All your symptoms look like mercury symptoms, all the people on this forum can relate to the troubles you been through, and to the troubles you are currently going through. We are all battling the same demon, Hg.

You should be wary of the DMSA and ALA, the path to recovery is narrow and full of dangers, although I would say not scared of the DMSA and ALA.

A lot the danger is from the things we do in the hope of getting better. A lot of the advice we receive from doctors, natural practitioners (NP) is given in ignorance, is wrong and will (and has) hurt. Why is that? Why are we hurt by the advice we receive?

We are hurt because:
1) 99pct of doctors or NP’s don’t know enough about mercury and all the terrible things it can do, but they act as if they do know.
2) we trust these doctors too much.

This is really important to understand. You cannot trust them. They are not taught how to deal with mercury correctly. They will screw you up more. Any chelation advice should come from the one source that is known to be the safest and least problematic protocol. Andy Cutler.

You have to become your own doctor. You have to educate yourself, for if you learn all the pitfalls, learn about all the troubles others have had, you can make informed decisions on how, what, where and when you attempt to heal yourself.
If you have learned the correct method to detox the mercury, learned what might go wrong, then there is nothing to be scared of.

I have had a rough time this year, amalgam removal took 9 long months and hurt like hell, but I’m not scared of mercury detox, I welcome it with open arms…..it is my route to good health!

Education is key. Read, learn and ask lots of questions. Lots of questions.

You didn’t say, but I assume you have not read Andy Cutlers book “amalgam Illness” ? His protocol is the one that has the most success and the least problems. It is simple too. but….it takes a long time. But…..from what you said, seems the other methods you have used screwed u up enough that you will probably be happy with something that doesn’t hurt but takes a long time. As apposed to hurts like hell and makes you worse!

The protocol is simple. Low doses of dmsa every 4 hours around the clock even at waking at night.

I started on 12.5 mg DMSA every 4 hours for 3 days on, 4 days off. After a couple of rounds I adjusted my dosages because it was a bit of a rollercoaster ride. I was getting symptoms starting again after 3.5 hours, so I reduced my dosing times to every 3hours which suits me fine. I also had to reduce my dosage to 6mg which is pretty low. I must have a high body burden.

If you start DMSA low enough everything will be fine…..if u get no symptoms you can slowly increase the dosage.

But before you start……you need to read “Amalgam Illness” by Andy Cutler. That is essential reading. If you read this book, you will know exactly how to get the mercury safely out of your body and how to get it out of yr brain.

I will say it again; Education is key. Read, learn and ask lots of questions. Lots of questions.

Don’t do anything with out asking here.

Another forum you should join is :

http://health.groups.yahoo.com/group/frequent-dose-chelation/

This yahoo group is wonderful, and you will learn masses from reading the daily email. The “files” section is very very good too. The general chelation protocol from that group is what you should be learning about which is as per Cutlers protocol, except that after 8 years of learning, they have learning that starting doses need to be low. They rcommend 12.5mg.

There are other cool places too, but that prob enough for now…..

So, gook luck, welcome and get reading……. <img src="/ubbthreads/images/graemlins/wink.gif" alt="" />

Hi Mel
Welcome to the forum. I have fibromyalgia also, which is mercury poisoning. I have also struggled with the whole viral thing and still have my ups and downs with it but is not as bad. I stay in out of the cold and away from the public as much as I can. That has helped me. I have not started Andys protocol yet. I also had h-pylori and have been struggling with regaining strength. I am going to start the chelation after the first of the year after I finish my parasite cleanse. I feel I am finally ready as long as money holds out. I have only been working part time so it is tough.
Everything Sunshine has said is right on. You have to educate yourself and study as to what might help you. The natural doc I was going to wanted to push me faster than my body could go so you have to be really careful with them too. It is all a little overwhelming but is all doable. Hang in there and ask all the questions you can.
Rachel <img src="/ubbthreads/images/graemlins/byebye.gif" alt="" />

Thanks Sunshine & Skies, great to meet you. Okay yes some years ago i started reading Andys protocol online. Back then i was sooo very sick it was simply too much to take on board. But i do agree with you with regards to the attitude to take with docotors and n'paths etc but i have found a great guy who initially wanted to do a very alternative antibiotic treatment first with me to try & reduce the bacterial & parasite load before any mercury removal. (years ago i did a hpylori treatment which was very worthwhile but felt other 'organisms' still around). Anyway it made a significant difference to my health. He's very up to date with this stuff & always attending seminars with international specialists in the areas of CFS & Hg involvment.

I to had HPylori & Blastocystis - herbal rememdies were tried for Blasto- tests & even came back negative for years but my instincts & body were acting otherwise. Anyway in August this year i did a 3 drug treatment which has really helped me. Im hoping now with a little less load hg detox wont be quite so traumatic... or am i dreaming here?

What i'd really like to konw guys is for those of you who have done it- have you got results? Do you feel better after a few rounds of chelation? Has anyone here made real serious improvments? <img src="/ubbthreads/images/graemlins/confused.gif" alt="" /> If i start i will for sure start with 6mg like you mentioned Sunshine, as i belive i prob hava high amount. BUt you say if you have no sypmptoms then increase.. if no symptoms are showing does that mean you're not getting the benefit from it? As no symptoms would mean i could at least get on with the activities & commitments i so treasure being able to do at the mo, im terrified of having to go through the neurological / mental sypmtoms of feeling like a dreanged fruit cake <img src="/ubbthreads/images/graemlins/laugh.gif" alt="" /> <img src="/ubbthreads/images/graemlins/blush.gif" alt="" />

Hi Mel.

IMHO – if you have gut problems, (like almost everyone does) then playing with antibiotics is like out of the frying pan and into the fire. I have read and researched enough now that personally I would never touch them again and I would not let my family take antibiotic’s either.

I too have a great guy, natural health practitioner, really really good, massively helpful….he still doesn’t know enough about mercury…just enough for me to hurt myself real bad after following his advice. Ho hum………ouch! This is painful experience talking here….not just something I read in a book.

I will repeat myself to emphasise the point: don’t trust anyone, they don’t know what they are talking about when it comes to mercury. If they have read cutlers book…..then fine. Otherwise you are playing with fire. Just ask on this forum about whatever you are advised to do. Someone somewhere will have done it and you will then be able to make a decent judgement if you want to then try it.

Results from chelation…..personally I have only just started, only done 5 rounds. That’s 5 weeks worth. I have minimum one year of this ….so its early days for me.

After 5 rounds I have got my color vision coming back. Yellow and blue and a little bit of green. My depth perception is better too. particularly blue, that’s come back very strong.

I only just had my amalgams out 6 weeks ago, but I notice the difference, I am getting better slowly but surely. You can read how each round went here…………..
http://herballure.com/ubbthreads/sh...&sb=5&o=&fpart=1


for others read here………………..

http://home.earthlink.net/~moriam/LOVE_LETTERS.html


it means your body is strong enough to cope with that amount of the chelator. Too many symptoms means you cannot cope. But if u start too high and get lots of symptoms you will scare yourself away from chelation, when all you needed to do was lower your dose.

It takes a long time, every week, week in week out…you need to be able to function as normally as possible during that time. You are still moving mercury out even with the low dosages.

Everyone is different, some feel GREAT on rounds, some don’t…. ……..but education is 100pct key. 100pct you must educate. Sorry to keep banging on about it……I sound like a school teacher. But this is your health we talking about, all the answers are out there……all the bad stuff happening with you has happened before in others and been cured…..you just need to find out where the answers are ……and waiting for doctors or NP to read up on mercury is like pissing in the wind.

Reading the book is essential.
Join the Yahoo FDC group I suggested, get the daily emails and read it every day. I assure you, you will find it very interesting, because everything they talk about is relevant to you and your problems.

Re : deranged fruit cake….yeah…I know what you mean…..I avoid that as much as possible <img src="/ubbthreads/images/graemlins/wink.gif" alt="" />

This is the protocol. This is what I did. I started on 12.5 and had to reduce to 6mg every 3 hours (not 4 hours)

This is the Cutler protocol you should learn about.
File - TK- My General Chelation Suggestions - PLEASE READ !!!
Posted by: "frequent-dose-chelation@yahoogroups.com" frequent-dose-chelation@yahoogroups.com
Sun Dec 16, 2007 9:01 am (PST)

My General Suggestions for starting oral chelation using Andy's
Protocol

Start ROUND 1 of DMSA 12.5mg. Take 12.5mg or less every 4 hours [or
more often 3hr] on the hour, including waking up at night!!!! If you
miss a dose by an hour stop the round and wait at least as many days
as you chelated before you start again.

If there are any side effects monitor these and if too intolerable, stop. A round is 3 days ON and 3 days OFF initially (later you can increase the number of ON days and OFF). You need to take at least as many days OFF as ON. A
common chelating schedule for DMSA is 7am - 11am - 3pm - 7pm -11pm -
3am. You can also take longer breaks between rounds if necessary to
recuperate.

If no side effects or mild manageable side effects occur then wait
three days or more before you start ROUND 2 DMSA at 12.5mg.

If no side effects or mild manageable side effects occur then do
another ROUND [3 days and 2 nights] of DMSA at 12.5mg. You can
increase your round by a day or two if you are doing well. So on this
round you could chelate for 4-5 days ON.

At this point you can continue for many more rounds of DMSA alone
before adding ALA. This will reduce your body burden before you start
taking mercury out the brain with ALA. This is often the best path to
follow.

If you choose to add ALA at this point then, Start ROUND 4
with 12.5mg DMSA and start ALA 12.5mg with each dose. Take both doses
every 3 hours on the hour or more frequently, including waking up at
night. You can stretch it to every 4 hours ONLY at night if it helps
you get a little more sleep, but go back to every 3 hours during the
day. Many people cannot do this as it redistributes too much Hg with
the fluctuation in chelator blood concentration.

If you miss a dose by an hour stop the round and wait at least as
many days that you chelated to start again. Your blood levels of the
chelator will have dropped too much with the late dose. Monitor side
effects especially after adding ALA, if un-manageable or intolerable
stop the round and reduce dose of the next 3-4 rounds.
Or stop the ALA and continue with the DMSA for a day or two depending
on side effects and how DMSA makes you feel on it's own.

[A second option at this point is to raise only the DMSA to 25mg for
ROUND 4,5,6 or more and see how you do on the higher dose before
adding the ALA. Sometimes the jump from 12.5mg to 25mg is too high
and you may need to stick at about 17mg.

Andy suggests you should never increase the dose by more than half of the current dose. Then add ALA in a later round [7-8 possibly] after you know how you are doing with the increased DMSA. When using ALA and DMSA together you
can continue DMSA alone for an extra day or more to remove the
intracellular mercury that the ALA pulls to the extracellular spaces.]

If no side effects or few, do another round same dosage, ROUND 5 DMSA
12.5 and ALA at 12.5mg.

If no side effects or few, do another round same dosage, ROUND 6 DMSA
12.5 and ALA at 12.5mg.

If no problems start next round, ROUND 7, and increase ONLY DMSA from
12.5 to [18.5 - 25mg] and ALA 12.5mg. You must only increase one
chelator at a time, so you know what causes what side effects if you
have them.

If no problems do a few more rounds at this dosage, start next round,
ROUND 10-11, DMSA 25mg and increase ALA also to 25mg. Also only
increase the dose of one chelator at a time.

Do NOT increase both together or you won't know which is causing a
problem.
If no problems arise, increase dosage gradually using the same
process above until you find a dosage that is manageable and stick
there for a long time. If problems occur then go back to the previous
manageable dose and stick there for at least few more rounds.

You can also increase the number of days ON if side effects are
stable, especially if you do well or better while chelating. It is ok
to chelate for longer periods if your body can keep up with the side
effects, then have the same time for rest periods.

Most can't go for too long because of lack of sleep due to the interruption of it,but some can chelate continuously for longer periods. If you feel a lot
better during the rounds you can extend it for a few more days
and see how you do.

I recommend except for experienced persons that really know what they
are doing and have done a lot of oral chelation following the
protocol not to chelate continuously or for really long periods.
DMSA and ALA usually no more than 2 weeks max.

Longer rounds excrete more Mercury and cause less redistribution.
Longer rounds are advised only for those that actually do better
while chelating - for those that have significant side effects while
on round will you need to take as much time off as on. If you do
better while chelating with the DMSA during those longer rounds and
stop to take a break because of lack of sleep etc. then you should
take some time off before starting again, I would suggest at least 4-
5 days.

Most can't do it for extra long periods. This especially true when
you add ALA and are dosing every 3hrs or more often. But with DMPS,
which is taken, every 8 hours (due to its longer half-life) people
can chelate longer or even continuously with low dosages, as you
don't have to wake up to take doses in the middle of the night.

ALA causes less copper to be released during rounds possibly causing problems in the long-term (especially for copper toxic people) so the off-days are
very important to allow the balance to return to your system if you
have problems with copper.
DMPS - Round one 5-10mg every 6-8hr around the clock for 3 days and
nights, the other rules [missing dose etc] are the same as with DMSA
and still apply.

Round 2 & 3 DMPS the same thing.

Round 4 DMPS if everything is going well and no intolerable or bad
side effects increase dosage to 10-15mg.

Round 5,6,7 DMPS same as above.
Round 8 - DMPS & ALA - If at this point you are still doing well or
better add 12.5mg ALA and do another 3-4 rounds.

Round 11,12,13 - DMPS & ALA - Increase DMPS if still doing well to
20mg.

Round 14,15,16 - DMPS & ALA - increase ALA to 18-25mg and see how you
do.
After this point increase dosages of chelators by weight [links
section] and symptoms remembering not to increase by more than 50% of
the dose you are taking.

If you cannot tolerate the ALA when you try to add it just continue
with the DMPS alone, gradually increasing dosage over time and
numbers of rounds to tolerance. If you happen to do better on round
than off an option is to extend the round a few days 4-6 and see how
you do.
If you still do better on round at this point try a week or
two, some people can chelate continuously with low doses of DMPS
until they feel they are ready to add some ALA.

ALA Alone - use the same dosage as [with] DMSA above every 3hr or more
often. Use the same technique & % for increasing dosage ect as described.

I generally recommend that everyone get all basic labs done
[metabolic,chemistry,urinealysis,lipid,thyroid,adrenal,hormonal (VAP) etc. Many of us have thyroid and adrenal issues and they require supplementation. With
proper testing and supplementation many people feel tremendously
better with just this.

Please !! make sure you read through Moria's site and the rest of the
links section for information - http://home.earthlink.net/~moriam/

Please remember everyone is different and not everything works the
same for everyone. Also these are suggestions/recommendations for
the protocol and not medical advice.

TK

hi mel welcome to the forum : I second what has been said so far ,these people know there sh*t , as for my experience with dmsa and ala ,it has been good I started out very low at 10 mg of dmsa ands ala and now able to increase it to 25 mg of each , you will just have to find your comfortable dosage and schedule that works for you .you have already done the most important work in removing you amalgam fillings the rest is just detox , good luck