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HELP!!!!!!! #7592
05/14/06 10:25 PM
05/14/06 10:25 PM
A
Anonymous OP
Unregistered

I have mercury toxicity, but I also have incompatible dental materials, plus cavitations. I have been repoisoned in the past just by entering a dental office and took two years in order to gather just enough strength to get in touch witha dentist online about my problems which he said were multifactoral. He wanted to see me and I told him straight that everytime I entered a dental office I got worse and he said "There will be no danger in my office, I have a sophisticated extraction system to clear any vapor if I do any mercury removals". (he was a mercury free dentist).

Well, I went into see him the first time and I got worse, but put it down to the antifungal I had been using. He wanted to see me a second time for further evaluation and putting me on more "health protocols" and the second time has finished me off. A few hours after seeing him, I began to get fast beating heart, uncontrollable laughing fits and then severe depression and things have worsened from there. I am now so ill I have even contemplated ending my life, but try to hang on from day to day. I'm in pain with my gut, so chelation is near to impossible for me. I cannot get well enough to even think about entering another dental office to get the job done with cavitations. Even if I did, apparently they don't always work out. I've had contradictory answers in regards to what materials should replace my incompatible ones (nobody can seem to agree). I am spending each day sobbing and salivating with horrific mental symptoms. I used garlic stupidly and the outcome from that has been absolutely devastating. I found out that garlic is dangerous in someone with cavitations due to the cysteine and methionine content, the anoerobic bacteria from cavitations desulfinate the cysteine and methionine resulting in volatile sulfur compounds - hydrogen sulfide and methyl mercaptan. These form complexes with mercury GREATLY increasing its toxicity. I can vouch for this and tell people please do NOT use cysteine and methionine in high doses in a supplement or use potent garlic capsules, as garlic naturally contains it.

I am in such a bad state, nobody can seem to help me. I have spent 2000 dollars on a dentist's evaluation/consultation, xray and testing and supplements, only to end up further poisoned and suicidal with nothing to show for it.

I don't know why I'm posting this as it seems there really are no answers. Trying to chelate with anything worsens my gut to wear I'm in such pain I cannot even function. I have no appetite to eat and my father looks after me and tries to help me with getting food.

I feel as though I'm living in a nightmare. I begged that dentist to please understand my problem with dental office vapor and could I see him somewhere that he's done no mercury removals. He dismissed my concerns and lied to me and said his office was safe. My feelings towards dentists cannot be described. I loathe them with every inch of my being. I had wisdom teeth removed that did not need to be removed and the dentist lied and said If I didn't there might be future problems. From that I ended up with cavitations and now cannot heal from anything.

Is there anybody out there who is going through anything like this? I don't think there could be any suggestions about what the HELL I can do. But hey, I'm willing to consider anybody's comments right now.

thanks


Re: HELP!!!!!!! #7593
05/15/06 12:54 AM
05/15/06 12:54 AM
P
promagma  Offline
Junior Member
Joined: Apr 2006
Posts: 34
Maybe LL clay baths can help you detox, without having to ingest anything. I get a similarly powerful effect from a bath as from DMPS or EDTA, in that I feel worse for a little while and then better, so I think is really effective. Start out with a very small amount, as it does seem pretty powerful.

Re: HELP!!!!!!! #7594
05/17/06 06:44 AM
05/17/06 06:44 AM
A
Anonymous OP
Unregistered

I think the sicker you are from mercury the more likely it is you have Lyme Disease. They feed on each other. You can't completely get rid of mercury toxicity while you still have Lyme, and you can't completely get rid of Lyme while you're heavy metal toxic. Their symptoms are also amazingly similar, and plentiful.

My naturopath was telling me today that people who get really ill from DMPS have Lyme in their systems, because the Lyme bugs love mercury and will bind to it. She described this as them kind of panicking when mercury tries to exit the body and they hang on for dear life!

I was sent to the naturopath by my holistic dentist for a Vit. C IV prescription to get my fillings out, and she said my symptoms also sounded like Lyme. But I wasn't sure I wanted to go through with the most accurate test because it was $250 and I was expecting a lot of dental bills coming up.

Then the NAET therapist I went to to treat an allergy to Vit. C (which I had to do before I could get the Vit. C IV for my dental work!) said she looked over my symptoms and they sounded very much like Lyme. So then I finally started looking them up and was amazed.

http://www.canlyme.com/patsymptoms.html

I went ahead and got the Bowen test and I'm glad I did. I tested very high on the scale for Lyme. There are co-infections they test for too, like Babesia, which can be devastating to the brain, teeth and eyes. Otherwise, just testing for straight Lyme is $150.

I'm taking Samento (TOA-free Cat's Claw) now, and Noni, per doctor's instructions. But I started taking TOA-free Cat's Claw before I even got the test because I was curious (Saventaro brand, 30 pills for $15 at the health food store) and started seeing improvements within a few days, primarily in my mood. But also in the rash on my face, even my dad commented on that. I may have noticed a difference so quickly because I'm also on a gluten-free diet, and some people have noticed that can help Lyme. Most likely because Lyme is another thing that can trigger gluten intolerance!

http://brain.hastypastry.net/forums/showthread.php?t=3964

It's not recommended that you treat yourself with Cat's Claw, but if you do, start on a low dose (I took just one pill even though the package said 3) and slowly work up. Mainly I think what you have to worry about is a herx reaction (from rapid dying off of bugs) and you can help keep that from happening by taking a liver detox supplement like Milk Thistle, which I'm also taking.

There's a study in the article The New Great Imposter that shows this type of Cat's Claw supplement is superior to antibiotics for Lyme. Here's that article and a bunch of others on Samento.

http://www.samento.com.ec/sciencelib/sammain.html

I hope this helps in some way. Illness can get so complicated, and the mental symptoms make everything that much more frightening. *hugs*

Re: HELP!!!!!!! #7595
05/19/06 12:53 PM
05/19/06 12:53 PM
L
ljamesjohnson  Offline
Senior Member
Joined: Apr 2006
Posts: 52
Hi Linda,

I have Lyme and mercury and would be interested to know where your naturopath got the info on Lyme, mercury, and DMPS.

Also, Samento may work for some people, but it doesn't work for everyone. The thing about Lyme disease is there are three factors that contribute to the fact that the disease is shows different symptoms for each person, and unfortunately that means that what works for one person in treatment will not work for another, and viceversa.

The three factors are 1. everyone's genetics are different, 2. along with their own immune system. Combine those two factors with 3. the fact that there are at least 100 different strains of borrelia in north america (300 worldwide), plus a long list of co-infection that a tick bite can make you ill from other disease (babesia, etc.), and the result is that you have a mess.

The bottom line is that what applies to one Lyme patient does not apply to another. I have seen ABX work wonders for some (though curing chronic Lyme patients is doubtful), while Samento went flat and did little to nothing. I have rarely seen the opposite, but it has happened where Samento has worked better than ABX.

It would be nice if there was a single magic bullet for Lyme, but the nature of the disease means that there isn't one. Sorry.

BTW, did Samento work for you?

thanks....

Re: HELP!!!!!!! #7596
05/19/06 01:21 PM
05/19/06 01:21 PM
Laura Clement  Offline

Advanced Master Member
Joined: Dec 1999
Posts: 396
Maine, USA *****
Bex,

First of all, hang in there. As long as you are breathing, there is always hope!

If I were in your position, the first thing I would try would be lots of vitamin C in divided doses throughout the day, in the order of about 6-8,000 milligrams daily. This worked extremely well for me when my mercury symptoms flared up. (Make sure there's no sugar, fructose, dextrose, etc. in your vitamin C supplement.) We use Vitamin C with Citrus Bioflavonoids.

The other thing I would do is start taking Algin as soon as you can. Algin will not pull any mercury out of your fillings... it will only bind to what is in your bowels that your body may be trying to eliminate. Several people have posted about how much Algin has helped them, and a few of them even had fillings still in.

If you can tolerate Vitamin E with Selenium, that would be very helpful also. But that's it. I wouldn't take anything else for at least a week, or at least until I started feeling better.

The idea is to get your mercury levels down which will help reduce your symptoms. Don't worry about dealing with the source of your exposure right now. You need to focus on strengthening your body and feeling better.

For more info about these 3 supplements, click on the link below:
Supplements for Mercury Toxicity

Please stay in touch and keep us posted on how you're doing. Let us know if there's anything else you need. Everyone is here to help.


Laura Clement
Author, HART Master Reference
Mercury Detox Supplements
My Favorite Amalgam-Illness Book
laura@herballure.com
1-800-358-4278 (U.S. & Canada)
1-207-584-3550 (Worldwide)
1-207-584-5552 (24-hour Fax)
Lyme Disease #7597
05/19/06 03:22 PM
05/19/06 03:22 PM
A
Anonymous OP
Unregistered

I have had severe reactions to IV DMPS infusions. I wonder if I could have Lyme Disease.


Quote
I think the sicker you are from mercury the more likely it is you have Lyme Disease. They feed on each other. You can't completely get rid of mercury toxicity while you still have Lyme, and you can't completely get rid of Lyme while you're heavy metal toxic. Their symptoms are also amazingly similar, and plentiful.

My naturopath was telling me today that people who get really ill from DMPS have Lyme in their systems, because the Lyme bugs love mercury and will bind to it. She described this as them kind of panicking when mercury tries to exit the body and they hang on for dear life!

I was sent to the naturopath by my holistic dentist for a Vit. C IV prescription to get my fillings out, and she said my symptoms also sounded like Lyme. But I wasn't sure I wanted to go through with the most accurate test because it was $250 and I was expecting a lot of dental bills coming up.

Then the NAET therapist I went to to treat an allergy to Vit. C (which I had to do before I could get the Vit. C IV for my dental work!) said she looked over my symptoms and they sounded very much like Lyme. So then I finally started looking them up and was amazed.

http://www.canlyme.com/patsymptoms.html

I went ahead and got the Bowen test and I'm glad I did. I tested very high on the scale for Lyme. There are co-infections they test for too, like Babesia, which can be devastating to the brain, teeth and eyes. Otherwise, just testing for straight Lyme is $150.

I'm taking Samento (TOA-free Cat's Claw) now, and Noni, per doctor's instructions. But I started taking TOA-free Cat's Claw before I even got the test because I was curious (Saventaro brand, 30 pills for $15 at the health food store) and started seeing improvements within a few days, primarily in my mood. But also in the rash on my face, even my dad commented on that. I may have noticed a difference so quickly because I'm also on a gluten-free diet, and some people have noticed that can help Lyme. Most likely because Lyme is another thing that can trigger gluten intolerance!

http://brain.hastypastry.net/forums/showthread.php?t=3964

It's not recommended that you treat yourself with Cat's Claw, but if you do, start on a low dose (I took just one pill even though the package said 3) and slowly work up. Mainly I think what you have to worry about is a herx reaction (from rapid dying off of bugs) and you can help keep that from happening by taking a liver detox supplement like Milk Thistle, which I'm also taking.

There's a study in the article The New Great Imposter that shows this type of Cat's Claw supplement is superior to antibiotics for Lyme. Here's that article and a bunch of others on Samento.

http://www.samento.com.ec/sciencelib/sammain.html

I hope this helps in some way. Illness can get so complicated, and the mental symptoms make everything that much more frightening. *hugs*

Re: HELP!!!!!!! #7598
05/19/06 06:13 PM
05/19/06 06:13 PM
L
ljamesjohnson  Offline
Senior Member
Joined: Apr 2006
Posts: 52
Hey BeX,

I am in a similar situation as you, though not as bad.

I had my amalgams removed 2 1/2 years ago by a mercury free dentist who was trained by Klinghardt, so I used a lot of garlic, MSM, chlorella, etc. I was so sick that I was throwing up from the mercury loosed in my system and the dentist couldn't help, so I fired him.

I then worked with one of Cutler's people and tried low dose, frequent chelation with both DMSA and DMPS, but again I got so extremely sick I couldn't continue.

Basically, my body feels like a toxic waste dump. The more toxins I create by killing candida or Lyme bacteria or by mobilizing mercury the worse I feel, and eash year it is getting worse. I honestly didn't believe I was going to make it through this last winter but I have.

Here is the punch-line: I recently did the comprehensive liver detoxification test through my naturopath via Great Smokies lab and I'll get the results in about two weeks. My guess is that my phase II liver function isn't clearing toxins from system, which is why the more treatments I receive the worse I feel, and it takes me weeks or months to begin to improve.

The liver's phase I processes toxins. Phase II excretes toxins. If phase II doesn't work properly you (or I) are not going to be able to do anything that creates toxins or we will get very sick. Thus, doing chelation is extremely difficult if phase II liver function isn't working properly.

I'll know in a few weeks if this is my problem, but if it is, it will put most of the problems I have had with Lyme, candida, and mercury over the last decade into a context I can finally understand. It should also help in designing a protocol that will finally enable me to detox without feeling like I'm dying endlessly.

I'll keep this board posted as to my results and what happens.

In the meantime, have you had your phase II liver function tested? BTW, a normal liver panel from an MD is useless in this area...mine are always fine. I'll wait and see what GSL has to say.

Re: HELP!!!!!!! #7599
05/19/06 07:10 PM
05/19/06 07:10 PM
SomedaySoon  Offline
Master Member
Joined: May 2006
Posts: 326 *****
ljames, this was really interesting. If you wouldn't mind, could you let us know what you discover when your liver tests come back? I wonder why the docs don't do more intensive liver function tests when they check the liver? Wait! Don't answer that....... I know, I know ....... money, insurance, ignorance ..... lol

SomedaySoon

Re: HELP!!!!!!! #7600
05/19/06 07:36 PM
05/19/06 07:36 PM
A
Anonymous OP
Unregistered

How do you get Lyme Disease? The first dentist I saw said I could have it, but I don't know. How is the test done? I think for me it is just the fillings, seeing as I got sick after having them. The dentist I have now never mentioned it. Is it an alternative health thing or can a regular doctor test for it?

Re: HELP!!!!!!! #7601
05/19/06 08:58 PM
05/19/06 08:58 PM
rocker56  Offline
Sophmore Member
Joined: May 2006
Posts: 11
Illinois, USA
I also had the GS Labs liver test you mentioned, though about 2 or 3 years ago, and my body was like a toxic dump as you described too. My phase II was extremely sluggish (almost non-existant) too. The Nutritionist described it using the garbage truck metaphor.....your liver sets the trash at the curb to be picked up day after day but the truck doesn't come to pick it up, or it's near full when it gets to your stop and can't pick up much, and it piles up and gets you very sick. Sheesh, i got a massage once and pushing all the toxins into my system from that made me extremely sick.

I wonder if that's pretty common with mercury poisoning.....

Re: HELP!!!!!!! #7602
05/19/06 09:35 PM
05/19/06 09:35 PM
L
ljamesjohnson  Offline
Senior Member
Joined: Apr 2006
Posts: 52
Hey Rocker56,

That's very useful into. Did you ever do anything that helped resolve the phase II issue?

Re: HELP!!!!!!! #7603
05/19/06 09:47 PM
05/19/06 09:47 PM
L
ljamesjohnson  Offline
Senior Member
Joined: Apr 2006
Posts: 52
Demi,

You get Lyme disease from a tick bite.

Also, there is no reliable test so you need to see a doctor familiar with Lyme....most regular MDs cause more trouble than they are worth and end up hurting people because they don't understand the complexities of how the bacteria evades normal antibiotics and other treatments.

Also, many chronic (longterm) Lyme patients also have candida and metal issues, even though many don't know it. In fact, chances are that one reason (one reason of many) they can't get rid of Lyme is because of metals, that if you have chronic Lyme you really need to deal with the metal issue first, just as you need to deal with metals before you can solve candida issues.

If you want to know more about Lyme contact me directly and I can help you determine if this is a direction worth investigating.

BTW, my Lyme website is www.LymeTreatment.com, though I haven't been well enough to update it for about two years.

Re: HELP!!!!!!! #7604
05/19/06 11:52 PM
05/19/06 11:52 PM
A
Anonymous OP
Unregistered

Thanks for the info. If I had been bitten by a tic would I know about it? I have never been bitten by anything that I know of, except stung by a bee once and bit by my friend's dog. I had a ringworm as a child which went with cream. Other than that I haven't got bitten by anything that I know of as I avoid insects big time.

Re: HELP!!!!!!! #7605
05/20/06 01:19 AM
05/20/06 01:19 AM
L
ljamesjohnson  Offline
Senior Member
Joined: Apr 2006
Posts: 52
Where do you live...which city and state? The problem with Lyme is that you may not remember getting bitten by a tick, and could still have Lyme.

Some parts of the country have a higher incidence of Lyme than others. Thus, where are?

Re: HELP!!!!!!! #7606
05/20/06 05:04 AM
05/20/06 05:04 AM
A
Anonymous OP
Unregistered

HI there, thanks for your reply. YES, I have used antifungals for candida and got EXTREMELY sick from it. I cannot use them, yet I need to get candida levels down. I have had the great smokies lab test done, and it showed my liver pathway phase one was overactive and phase two pathways were underactive. It was pretty bad apparently.

This was supposed to be addressed by my dentist who put me on a candida regime for my gut, because candida can worsen the liver condition. He put me on fish oil for my phase two pathways because apparently it helps. Yet one visit to his office respoisoned me while I was there, so I was unable to get much out of the protocol he put me on.

Not sure what to do or take anymore. Nothing seems to work too well.


Re: HELP!!!!!!! #7607
05/20/06 05:47 AM
05/20/06 05:47 AM
dawn  Offline
Master Elite Member
Joined: Apr 2006
Posts: 1,032
UK, London, Heathrow ****
I have always had trouble with my liver, do you know of ways of helping the stage 2 detox. Thanks Dawn

Re: HELP!!!!!!! #7608
05/20/06 06:52 AM
05/20/06 06:52 AM
Russ  Online Content

Master Elite Member
Joined: Dec 1999
Posts: 30,797
Maine, USA ****
Dawn,

Stage 2 liver detox can be increased in these ways:
  • Increase gluthathione levels, provide cofactors with supplements
  • Increase sulfate availability via supplementation of sulfate and molybdenum.
  • Reduce insulin resistance with chromium, provide cofactor supplements, increase thyroid levels, reduce inflammation.
  • Supplement glycine or taurine and cofactors.

This is the short of it. I got this from Dr. Cutler's book Amalgam Illness: Diagnosis and Treatment, page 43.


The Captian
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Re: HELP!!!!!!! #7609
05/20/06 10:39 AM
05/20/06 10:39 AM
A
Anonymous OP
Unregistered

I am in west UK. We don't have any deer here. I didn't see deer until about 10 years ago when I visited the south, and I had been sick about 10 years before then. We are pretty rural here, though. I have been to the USA, but not until 7 years ago. Never been anywhere else in Europe until last year. I don't think I have Lyme's. I think the dentist was saying that because he didn't believe mercury could make me ill. He said I have something like cancer or Lyme's as mercury wouldn't do so much to my body. I never went back to him.

Re: HELP!!!!!!! #7610
05/20/06 12:09 PM
05/20/06 12:09 PM
A
Anonymous OP
Unregistered

Hey ljamesjohnson,

you wrote: That's very useful into. Did you ever do anything that helped resolve the phase II issue?

Not thinking at that time that my health problems may be due to mercury, he put me on a detox fasting regimen for 2 or 3 weeks which included sauna, eating veggies and then working up to a few days of having one of the Green drink mixes as my only vitamin source. All the time too he had me taking the L-Glutithione supplement and on a protein drink and some kind of detox drink too. And then I would work my way back to solid foods (steamed veggies) and then to fresh veggies than on to other regular foods. All the supplements and drinks were Metagenics brand which can only be gotten through a Chiropractor, nutritionist, etc.

Even though I felt somewhat better in some aspects since I was not eating regular food, i think it probably did me harm since I still had all my 16 amalgams in and 2 metal crowns over amalgam (which Cutler says is very toxic because the dissimilar metals cause the mercury to vaporize very quickly...especially under a Gold crown which I had and that one caused a large tattoo on my gum). So not knowing of and not pursuing mercury sickness at the time I probably did more harm than good....excpet maybe for the Glutithioine supplement.

What Russ mentioned above kind of backs up some of this.....taking protein (which has cysteine and taurine) and the Glutithioine supplementation to help the Phase II liver pathway.

Re: HELP!!!!!!! #7611
05/20/06 12:13 PM
05/20/06 12:13 PM
rocker56  Offline
Sophmore Member
Joined: May 2006
Posts: 11
Illinois, USA
I'm sorry, that was me above.

I meant Glycine, not cysteine in the protein drink. Sorry.

Re: HELP!!!!!!! #7612
05/20/06 12:26 PM
05/20/06 12:26 PM
rocker56  Offline
Sophmore Member
Joined: May 2006
Posts: 11
Illinois, USA
Here's some of the product info for the protein drink they had me on. I'm not promoting it or anything, but it gives info on why it's used...which looks to also back up what Russ mentioned. The product is UltraClear Plus by Metagenics. Myself, I'm using a Whey protein drink now.

Provides the same great macro- and micronutrient base formula and benefits as UltraClear, but with added support for those who are "imbalanced detoxifiers"—people with low Phase II activities.

Imbalanced detoxification may be due to genetic predisposition, a history of chronic nutrient insufficiency, and/or toxin overload, which can result in a buildup of reactive oxygen intermediates and a subsequent increase in symptoms and/or tissue damage.

Features added glycine, taurine, sodium sulfate, and catechins from decaffeinated green tea to better support Phase II activities.

Safe for long term use in individuals with chronic exposure to toxins.

Re: HELP!!!!!!! #7613
05/20/06 02:49 PM
05/20/06 02:49 PM
L
ljamesjohnson  Offline
Senior Member
Joined: Apr 2006
Posts: 52
I lent my book to someone and can't immediately get it back. Is someone able to list in more detail what Cutler recommends for
phase II detox support from P. 43.

If anyone has had any other success in this area it would also be really useful to hear the details.

Thanks Russ, this is extremely helpful.

Re: HELP!!!!!!! #7614
05/20/06 03:01 PM
05/20/06 03:01 PM
L
ljamesjohnson  Offline
Senior Member
Joined: Apr 2006
Posts: 52
Hey Bex,

I can't do antifungals either, I think because my liver can't handle the added toxin load due to the die-off reaction, so I control yeast through diet and stay on an extremely strict candida diet continually.

I really don't have any other choice because if I go anywhere near sugar, bread, etc. I pay for it bigtime.

I'm looking forward to the day that I can get mercury under control, which will allow me to finally deal with candida, leaky gut, and possibly Lyme, and then I'm going for the biggest chocolate sundae imaginable....

Until then, I mainly eat fresh salad and use chicken as my chief source of protein. For me, I have tried other food combinations, but my leaky gut won't allow me to eat most other things. For now, this works because I can actually eat it, and it doesn't aggrevate candida.

Good luck.

Re: HELP!!!!!!! #7615
05/20/06 03:39 PM
05/20/06 03:39 PM
A
Anonymous OP
Unregistered

You can get Lyme from a lot more than ticks. There aren't supposed to be any Lyme-carrying ticks at all in Alaska, yet my doctor says their clinic has treated many people with Lyme who have never even left the state. I'm not one of them though. I've spent a lot of time in Oregon.

http://www.samento.com.ec/sciencelib/sarticles/thegreatimpostor.html

"Researchers and doctors I’ve spoken with have now found live spirochetes of Lyme in fleas, mites, and mosquitoes. And although it was first thought the disease couldn’t be transmitted directly from human to human, the live spirochetes have now also been found in blood, urine, tears, semen, breast milk, cord blood, and vaginal secretions.

Doctors who specialize in treating the disease are convinced it can be passed from one infected person to another by several means, particularly through repeated sexual contact and passage through the placenta in the womb. (Rheum Dis Clin North Am 89;15(4):657-77) Given Lyme’s syphilis-like nature, this shouldn’t be such a surprise.

Even the CDC has now admitted what researchers found years ago, that Bb bacteria survive the purification process of donated blood and could be passed through blood transfusions. (J Infect Dis 90;162(2):557-9) (Transfusion 89:29(7)646-5) And, as if that weren’t alarming enough, there’s even a possibility that our food supply could be a source of the spirochete. Researchers at the University of Wisconsin have found dairy cattle infected with the Bb bacterium, which raises the question of whether milk or other products in our food chain may be a danger. (Am J Vet Res 94;55(9):1228-31) (Int J Food Microbiol 91;14(3-4):247-60)"

********

I'm not too keen on antibiotics. I've been on so many in the last 20 years for recurrent ear, sinus, bladder/kidney, vaginal, and other infections. Doxycycline is one of the preferred drugs for Lyme, but it to me it had less effect than any other antibiotic I've been on. Flagyl, interestingly enough, has made me feel the best in general, and I recently found it's used for treating late-stage Lyme. When I told that to my regular doctor a couple days ago, he looked at me like I had two heads. "Flagyl isn't used for Lyme!" :eyeroll:

http://remedyfind.com/rem.asp?ID=9557

My sister contracted Lyme over ten years ago, and she took doxycycline for over a year recently and is sicker than ever. Before that she'd been on a wide array of antibiotics and became resistant to each one. The doctor also had her take a Diflucan (the "single dose cure" kind) every day for a month, in a desperate attempt to kill the candida. Didn't work. She originally had a circular rash on her arm that they called ringworm, years before she was diagnosed with Lyme.

I already don't like the Samento as much as the Saventaro. I felt different every time I took the latter, but I don't see much difference from the former, yet. I'm also looking into Vitamin C/Salt tablets and Rife machines, which seem to be a big favorite amongst Lyme patients. The (hourly) Vit. C/Salt combination sounded too easy, cheap, and crazy to be true, but it's listed first in the success rate of alternative treatments for Lyme (above Cat's Claw) in the handout my doctor gave me. And after I read the 5-page explanation, it made sense.

I just ordered a book on Rife, so I don't know too much about it yet, but its history is fascinating. In the 30's doctors had these machines that delivered electrical impulses to kill bacteria, then when penicillin came along the drug pushers effectively killed that method. What a different world we would live in if popping antibiotics and genuflecting to drug companies wasn't the norm.

On testing -- the Bowen test acutally measures the number of bugs in your system, and they take a picture of what they find under the microscope. There's no guesswork about "antibodies" like with conventional testing.

http://www.samento.com.ec/sciencelib/sarticles/thegreatimpostor.html

Finally, a Test that Works

The conventional tests for the disease involve the Western Blot, which has the problems I mentioned earlier, and another called ELISA, which many doctors still use even though it is very unreliable and may miss as many as 75 percent of Lyme infections. Doctors specializing in the treatment of Lyme, however, utilize a combination of Western Blot testing, physical examination, tests for other related pathogens, and often a new test developed by researchers Dr. Joanne Whitaker and Eleanor Fort. The test, which checks various body fluids for the presence of the Bb pathogen, is highly accurate and can provide results within 20 minutes.

This new test is called Q-RIBb, and is available only by a doctor’s request through the Bowen Research and Training Institute at 727- 937-9077. You can get more information on their Web site at www.bowen.org. (The test costs $150 or $250, depending on the sample used.)

******

It sounds steep, but I got a letter in the mail a few days later from Bowen saying that the $250 is tax deductible. They call the fee for the test a "donation" as they are a research institute.

Re: HELP!!!!!!! #7616
05/20/06 06:38 PM
05/20/06 06:38 PM
L
ljamesjohnson  Offline
Senior Member
Joined: Apr 2006
Posts: 52
Lyme is an individual disease. What works as a successful treatment for one person does not necessarily work for the next person, be it antibiotic or alternative treatments.

For example, docycyline is one of the first ABXs usually prescribed for new infections (along with amoxicillan). It works successfully for many people, but not everyone. The same is true for flagyl, which helps many, but, for example, did nothing for me. Unfortunately, each patient has to find what works for them.

The Bowen test certainly holds the promise of letting the country know how wide spread Lyme actually is. However, and tell me if I am wrong on this, but just because you test positive on a Bowen test does not mean you have active Lyme disease.

Doesn't their test needs interpretation, and for that reason there has been some abuse by health professionals who use Bowen's mostly positive Lyme results to sell their particular form of Lyme treatments?

The only established, 100% accurate Lyme test that I know of is if you get a positive PCR result. Hopefully, in time the Bowen test will become accepted by even mainstream Lyme MDs, which it isn't yet.

In the meantime, for most people Lyme remains a clinical diagnosis based on exposure and symptoms and needs to be done by a Lyme literate MD, at least according to Dr. Burrascano, who continues to write the bible on allopathic Lyme treatment each year. See http://ilads.org/files/burrascano_0905.pdf. His is one view.

Bryan Rosner wrote the book on Lyme and Rife and he has a very good Yahoo group that has helped many, many Lyme patients find relief using something other than ABX, which, by the way, are crucial to stop new Lyme infections, but will not cure most chronic cases.

There is much we do not know about Lyme, just as with metal toxicity. Both the diagnosis and treatment of Lyme disease are controversial, in part, because each patient needs such individual care....again, just like heavy metal toxicity.

I wish things were more clear cut with Lyme and metals and I also wish that there wasn't all of this controversey and unclarity around both diagnosis and treatment for both.

In the meantime, all we can do is try to learn, and help each other.


Cutler's Response to Slow Phase II Liver Function #7617
05/21/06 12:19 AM
05/21/06 12:19 AM
Russ  Online Content

Master Elite Member
Joined: Dec 1999
Posts: 30,797
Maine, USA ****
Hey LJJ,

Would love to post more info on increasing liver Phase II, just quite a bit of typing and there are some graphics as well.

Ummm, let me see if I can condense the info:

"Cruciferous vegetables increase many phase II rates..."
pg 110

" Ellagic acid from red grape skin also does this as do Rosemary and soy."
pg 110

"Impaired methylation can be corrected with choline, trimethlyglycine, folic acid, and Vitamin B-12."
page 110

OK, well there is a lot of information on this throughout the next several pages of the Amalgam Illness book so when you get your book back, check out pages 110 and on.

Hope this helps.


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