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Another "brain attack", please help!
#31346
02/01/08 08:49 AM
02/01/08 08:49 AM
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OP
Elite Member
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Joined: Nov 2006
Posts: 573
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Hey guys, anothger terrible thing happened to me again.
It's morning as I'm typing this, and last night, when I was in bed and watching tv, I started getting disoriented especially in most of my LEFT BRAIN and the left brain esp left temporal lobe started feeling all WET and kind of numb. And I just couldn't think, use that brain to think.
had no neurological symptoms, though my right hand felt a little bit strange but that could have been the psychological effect of it, some anxiety.
I have been going through a cinammon candida cleanse, that I've fed the last days (cheated big time) and I was using a couple of cloves of garlic in a jogurt sauce yesterday.
now in the morning my left brain still feels blocked, after I woke up I didn't remember much, didn't remember why some things were on my desk , it's like I lost orientation in recent events, or didn't remember the fact that all my problems started with that dental visit, like part of my memories were taken away.
I am in tears why is this happening to me all the time, one thing after another, this is all feels like some kind of a stroke, I am especially worried about that feeling of 'wet brain' (as if your brain was wet) I think I has something like that before occur in the last year BUT I DONT REMEMBER.
i hate this life, this damn torture, hate god.
sorry for taking your time again guys, help appreciated.
has anyone had something similair occuring, esp the wet brain thing?
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Re: Another "brain attack", please help!
#31350
02/01/08 10:01 AM
02/01/08 10:01 AM
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Graduate Member
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Joined: Sep 2007
Posts: 186
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if your nervous system is very stressed or you feel your brain is damaged you need lots of magnesium..... it is also crucial for mercury detox. check this out: http://george-eby-research.com/html/depression-anxiety.html
After reviewing this member's history, we have concluded that they were attempting to discredit our system with malice. They have been banned.
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Re: Another "brain attack", please help!
#31352
02/01/08 10:14 AM
02/01/08 10:14 AM
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Freshman Member
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Joined: Nov 2007
Posts: 4
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I had some conversations with a friend last summer who's also had those "wet" brain and skin feelings, and I found it ironic because I'd just been reading that they were neurological. Can be related to MS (which we know mercury can cause the symptoms of).
That my left brain was weakening, or growing fainter was one of the feelings I started having as a teenager. And then a few years later after some emotional trauma it became significantly worse. Stroke-like, as you say. I just crashed. Horrible headaches that would never go away on the left side of my head, dizzy spells, weakness in the muscles on the left side of my body, more trouble thinking and speaking, etc.
I went to so many doctors and they just acted like it was nothing. Finally, a friend who was a nurse said "it sounds like you've had a stroke." Wow. I felt so validated, because yes, that was just what it was like. And of course doctors would never think a nineteen year old could have a stroke.
After I found out I had chronic Lyme a couple years ago, I also ran across information that it can cause strokes. All those years of wondering how on earth such a thing could happen. I also have plenty of metal poisoning so I've had to work on that, too.
I know. It's incredibly frightening! Everything just seems to keep falling apart and you don't know how to stop it! Lyme and mercury poisoning have very similar symptoms. But I've made quite a bit of headway in less than two years, even after over 25 years of being really sick. So there still can be hope no matter how bad things look.
One of the things I've found most helpful is Natural Cellular Defense. It reduced my metal symptoms significantly and knocked the anxiety way down. I've still got about a dozen fillings (under crowns and bridges) to contend with too.
I sometimes take activated charcoal when I feel "toxic" and that often knocks a headache right out, so you know it's the toxins that were causing it.
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Re: Another "brain attack", please help!
#31354
02/01/08 10:31 AM
02/01/08 10:31 AM
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yeah, the cold wet drippy sensation.. that is mercury leeching out of your tissues. I keep DMSA on hand for big days of that because it's going into your bloodstream at that point to be cleaned out and I need all the help i can get at those times. i'll take a dose or 2 of about 50mgs dmsa on those days depending on how wet/drippy it feels..
I usually get the sensation in my legs but I have had it in my head too. drink lots of water, use something to bind the mercury if you've got it... dmsa, chlorella, anything, edta... eat garlic, raw in a salad or with cucumbers is great. eat lots of green stuff, salads etc. Take your supplements calcium. magnesium, zinc, selenuium etc to quickly replace mercury coming out of bone, tissue etc. take supplements about 4-5 hours, maybe 6 after taking dmsa. Let the dmsa work first to bind toxic junk, then megadose shortly after to replace.
You might want to consider a colon cleanse at this point too because if it has started coming out like that it'll end up in your butt and you need to help it along there too because it'll numb your colon just like it numbs your brain and you won;t be able to poop at a certain point so get your colon cleanse herbs ready. Swiss Kriss is a good inexpensive herbal laxative for example. There are others. Sunshine like the Humaworm colon cleanse a lot. Check your local health food store. I got some detox/colon cleanse teas that are great too. I had stoppd my colon cleansing for a bit and that was mistake. you really do have to do that when chelating.
Pineapple (fresh) is also great to eat, helps keeps the bm's regular.
Believe it or not, it's a good thing, the drippy sensation, and it passes (though it will happen agian now and then) and you you are obviously doing something right to get the mercury moving like that and you are on the road to recovery.
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Re: Another "brain attack", please help!
#31357
02/01/08 10:53 AM
02/01/08 10:53 AM
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Master Elite Member
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Joined: Jun 2006
Posts: 4,178
NZ
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Hi Jinx, I don't know what to tell you, but from your first post I would probably be very careful of garlic. I ended up in the ER after taking a garlic supplement.
I know some people do really well on it, but this stuff is pretty powerful and for me? I felt like it had done damage. My brain, my body, I cannot even describe the pain I was in after it.
I don't know if raw garlic could do the same, I used supplement form, but had to pass this onto you. I would also be really careful of any powerful cleanses too. If you are anything like me? You may find that toxins easily redistribute and go into areas that cause frightening symptoms (brain and otherwise).
Some people can do great on these things, but people like yourself, me, others who are ultra sensitive, possibly already weakened/damaged in certain areas, can find awful backlashes that don't always seem to make sense.
I wish I could help you more Jinx. I don't know if the DMSA will help you, but I'd keep on if you've found any aid with it in the past.
Again I'd be wary of the cleanses with you. I remember you had something happen before when I think you did an enema or something and it seemed very harmless in what you did, but the reaction was not.
And as I said, just be careful of garlic. Garlic can be a really good thing for some, but not so for certain other people.
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Re: Another "brain attack", please help!
#31363
02/01/08 12:10 PM
02/01/08 12:10 PM
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Advanced Master Member
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Joined: Sep 2007
Posts: 491
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Jinx ,sorry to hear of you suffering so much. I feel like I can identify with you at the moment,I have had a few scary days,last wednesday night I experienced something similar to what you described in the 1st post. I thought it was a low blood sugar,numbness,mind going blank forgetting what I was saying& doing,I ate something & tried to relax but my body was so tense I could hardly eat ,it took near 2 hours to get myself feeling someway normal & went to bed feeling really scared. The last few days I have spent taking it really easy,trying to get some strenght back.
Jinx,you mentioned a cinnamon candida cleanse you were trying, I just wondered do you know that cinnamon can really lower blood sugar levels? Have you been taking alot of it?
Last edited by sunflower; 02/01/08 12:15 PM.
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Re: Another "brain attack", please help!
#31366
02/01/08 12:51 PM
02/01/08 12:51 PM
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So Sick but did u have that wet feeling ON THE BRAIN?? It all felt like some cold water was spilled on my left brain, and it became numb and I couldn't think 'with it' anymore, that's why my first association, that it's a stroke, I think remmeber reading that that stroke victim felt like the brain went 'wet'.
and did u have it so extensiveley like I had , like whole big brain parts affected?? It honestly feels like almost my whole left brain has been affected. Yes, I have had some pretty big wet drippy brain days. They sure do beat the hot spot burning brain days I had prior to chelating. Whatever you are doing Jinx, it's working, I would stay with it. I went through quite a bit of trauma chelating early on, it was not fun. It does get better, in fact I would say at this point I am quite a bit better than I was before I got real sick, though i have some bad days still, but not too bad.. You really need to use DMSA on days that you have the big drip sensations. I have had parts of my head fell quite numb, fingers, no sensation at all, very scary. It really does go away Jinx but the symptoms reassert themselves as the stuff is coming out, that's all that's happening. Drink water, eat garlic, use dmsa once or twice a day (25-50 mgs), do a colon cleanse. eat salads with lemon and olive oil. It's imperative you keep the bm's steady and constant to keep the mercury from redistributing. Use an herbal laxative if you have to. The first time I ever felt that drippy wet sensation was after the doctor started chelating me with the DMPS. So for sure, it's mercury. i still get it now and then after i eat a strong batch of cilantro. It's defintely mercury, it's defintely the sensation of the mercury leaving. Your brain numbness should clear up within 1-2 days. Eat healthy. You will feel great in a few days Jinx. but you still have to stick with it, if this is the first time you ever felt that sensation, plan on several more months of it, the numbness gets better as time goes by, i rarely get numb anymore but still get drippy. So I still take DMSA once, twice a week or so. Personally i'd stay away from chlorella with numb brain, it sort of excerbates that for me. you might want to take some kelp or algin too. whatever cleans the blood. I'd head straight to the health food store for some herbal teas if I were you. Detox teas, laxative/colon cleanse teas, that type of stuff. and don't forget the Swiss Kriss. can't beat it for the price.
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Re: Another "brain attack", please help!
#31368
02/01/08 01:27 PM
02/01/08 01:27 PM
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Master Elite Member
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Joined: Jul 2007
Posts: 1,597
London, UK
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hang in there jinx I’m feeling $hit today so I can’t participate much herebut I have a couple ofcomments
trouble with garlic can be from 2 reasons: 1) sulphur food…mobilise mercury. Only one thiol thingy. 2) very anti-parasitic, causes fungus, bacteria, parasites in your body to die-off
it is likely that these 2 can happen at the same time to so don’t rule one or the other out auto
fungus bacteria parasites can be anywhere in your body. When I say anywhere I mean anywhere….gut, legs, feet, eyes, butt and yo head too.
what you do here and now? I can;’t really thing straight today sorry mate
drippy stuff sounds like merc
"All truth passes through three stages. First, it is ridiculed. Second, it is violently opposed. Third it is accepted as being self-evident."
Sunshine
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Re: Another "brain attack", please help!
#31369
02/01/08 01:31 PM
02/01/08 01:31 PM
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I'm tellin ya, if all that followed the cold drippy sensation, it's really just the process the mercury is taking as it's leaving and it will clear up.
I've been there jinx, quite a few times. Keep chelating, keep cleansing.
the first time I had that drippy on it scared the heck out of me too, had never ever felt anything so weird in my life.
You do have DMSA over there right? I recall you mentioning you bought some, use it.
Gosh there were days my eyes felt like they just wanted to roll around in circles no kidding. And believe me, thinking was past tough, those were just lay down and rest days.
I was feeling absolutely superb the past couple months and then I did a liver flush a couple weeks ago... I should have known, I could feel slightly in my lower back i needed a colon cleanse... but anyway this HUGE stone came out and then a day after that I ate a whole buunch of aloe and a couple days after that... oh my gosh I must have unclogged something major, major drippy.. but it was weird, major drippy but at the same time it felt like my lymph system had dumped, which is wonderful... but then i got constipated... I should have done the colon cleanse first... now I am paying for it I can feel some redistribution in my back muscles, have been a tad forgetful all week too... but I'll get it out.
The drippy sensation is your best friend Jinx... but keep the DMSA handy. I bet if they took a blood test this week you would be off the charts with mercury in your bloodstream. That's good jinx, it has to go that route to exit. Once it's in your blood the dmsa picks it up real easy. garlic also helps your body eliminate mercury.
get yourself some herbal laxatives, please.
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Re: Another "brain attack", please help!
#31370
02/01/08 01:42 PM
02/01/08 01:42 PM
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I know you've been real sick Jinx, but you just started really chelating/cleansing the past few months... it took a good couple months of chelating for me to get to the drippy stage too.
So like before, you were sick and complaining, and now you are kind of walking through the fire... it's pretty nice on the other side of that fire jinx, stick with it, by this time next year you might just be the heathiest member of your family. Expect several months of ups and downs but you'll get there.
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Re: Another "brain attack", please help!
#31373
02/01/08 05:53 PM
02/01/08 05:53 PM
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mike, real sorry you had such a freaky experience but hang in there, it will pass, mercury does the maddest things,ive had plenty and still do, everyday,different symptom for me. i had thge feeling of wet on my forehead, it really freaked me out, i dont get it as much, the memory probs im sure will get better, you are doing things right. it is scarey i know too well about that we are here for you. i have a very bad memory all my life but i get stages where old childhood memories are coming back but then my memory gets worse for a while, like im 90 yrs old or something.
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Re: Another "brain attack", please help!
#31378
02/01/08 08:51 PM
02/01/08 08:51 PM
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Master Elite Member
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Joined: Jun 2006
Posts: 4,178
NZ
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Hi Jinx, from what I remember, I had episode after episode where I was certain brain damage had occured and hard to believe, but obviously there wasn't because I started to come right and those areas where I thought were dead or damaged, were (or seemed) to be completely functioning again.
But as I am not a doctor, I can't tell Jinx. Unless you are paralysed down oneside or noticing any? Because mercury can attack the nervous/neurological sytem, it is no wonder effects like this are noticed and occur.
I am doubtful you had a stroke, but again I am not in a position where I have the right to say "yes" or "no". Not being a doctor or having the testing to find those kinds of things out.
Jinx my brother suffers from epileptic seizures. His brain would go into a state of trauma from this and he would not be able to think or take in information or recall what happened. I had to sit and repeat myself non stop to him because it took time for the brain to come back into some kind of balance and the messages to start firing again normally. He would sit and ask me the same questions and i kept telling him what happened and he'd nod. Then a few seconds later, he'd ask me again. it was like the systems had almost shut down on gone right out of whack.
I don't know if I can compare this with yours at all, but it still reminds me of neurological shock or something. Perhaps in your case from a massive redistribution and the fact you (like myself may have weakened barriers (blood brain barrier for one). I cannot say, I am only taking guesses and probably shouldn't be doing that.
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Re: Another "brain attack", please help!
#31382
02/02/08 01:08 PM
02/02/08 01:08 PM
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Graduate Member
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Joined: Sep 2007
Posts: 186
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anybody here?? i can't think dont know what to do. Take lots of magnesium... www.george-eby-research.com/html/depression-anxiety.html
After reviewing this member's history, we have concluded that they were attempting to discredit our system with malice. They have been banned.
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Re: Another "brain attack", please help!
#31384
02/02/08 01:29 PM
02/02/08 01:29 PM
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Advanced Master Member
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Joined: Sep 2007
Posts: 491
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Yes Magnesium is great. That is a brilliant link you posted, bg123.
Actually I thought I could not help,but maybe if I write what I did to get myself feeling better since my episode the other night,
straight away I took a few drops of rescue remedy,
took a few sips of water,but held it in my mouth and under my tongue for a while before swallowing. It goes directly to where it's needed most this way,
I took a pinch of himalayan rock salt onto my tongue,
I drank half small cup of rice milk with some cayenne pepper in it.(for a few reasons 1.to try &get some heat into my body, 2.A practitioner told me it's good to treat shock.and my body felt in some kind of shock.freezing & shaking.
I ate an apple,some chopped raw pepper and some celery, and about 3 handfulls of pumpkin seeds,these are really calming nourishing food(also high in magnesium & zinc) it was really hard to chew though because my face felt all numb.
I massaged my face neck and inside arms with natural progesterone cream and this is when I started to feel somewhat normal. This cream is also suitable & recommended for men.
I also took about a quater teaspoon of blackstrapp molasses (maybe not for you said you doing the candida cleanse)but I took it because I thought it was hypoglycaemia that was happening.
Also it's important,if you can to breathe through your nose & not your mouth, this is much better for you.
Then after half an hour I made a strong half cup of camomile tea and when I finally fell asleep I felt much better.
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Re: Another "brain attack", please help!
#31385
02/02/08 01:29 PM
02/02/08 01:29 PM
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no, not from my experience. My whole head has never felt numb all at one time. It''ll be left or right, usually toward the top or side, or neck aches... and then i get these weird numb drippy spots around my eyes/eye brows now and then too. My left temple gets numb for a few days here and there too.
yeah it's scary, but really, it goes away. keep chelating. take your supplements, don't forget Vit C and fish oil, . drink water. get some herbal laxatives. make a roast of lamb. take the day off, take the week if you need to.
it's saturday morning. I can never think on saturday morning either. <img src="/ubbthreads/images/graemlins/smile.gif" alt="" />
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Re: Another "brain attack", please help!
#31387
02/02/08 01:45 PM
02/02/08 01:45 PM
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Advanced Master Member
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Joined: Sep 2007
Posts: 491
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Sorry Jinx, our posts crossed and now mine looks completely irrelevant ,maybe,to what you are going through.
In regards to sides of the brain being effected, I think it's possible that only one part can be effected.I have had such strange symptoms like that since I've had all the amalgams replaced & even before,such as memory loss,going blank,foggy head & dyslexic symptoms, all varying in degrees and at different times. In regards to the suggestions by people about supplements,please don't underestimate the effects of mineral imbalances on your body& especially your brain,magnesium is truly incredible, I recommend checking out the link from bg123.
When you are actually going through it though ,I know it feels very little comfort. You are not alone with this,lots of others here,including me,have said they have similar experiences.
If you are really freaked out you should call a practitioner,it is their job to listen & take your symptoms seriosly.
Afew times I have also suspected that I've had a stroke of some kind.It was lonely and frightening but I never told anyone not friends family or doctor.Definitely have some kind of damage to my brain.But I believe we can all recover .
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Re: Another "brain attack", please help!
#31389
02/02/08 02:46 PM
02/02/08 02:46 PM
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when people say something is numb jinx, it usually includes 'not working real well, not feeling right' without too much extrapolation.
How it is you've determined the entire side left of your brain has shutdown I have no idea anyway. Because if that were true you would probably be blind and unable to walk also.
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Re: Another "brain attack", please help!
#31391
02/02/08 07:16 PM
02/02/08 07:16 PM
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Master Member
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Joined: May 2006
Posts: 326
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jinx,
I'm so very sorry that this is happening to you. I wish I could offer help. Out of frustration at my not being able to do anything, I've added you to my prayer list. I'll be praying for relief and answers for you.
I know that you've said the doctors don't believe you and don't want to address the mercury issue. But I have a suggestion on what you're experiencing right now.
Since you are feeling as though you've had a stroke, I'm wondering if it might be worth the trouble and frustration to go to a hospital and tell them that. Don't tell them about your mercury toxicity. Just tell them about your neurological symptoms and your concern that you might have had a stroke.
Maybe they'll listen and do another MRI or CT scan or Spect scan (or whatever is appropriate in diagnosing strokes). That way you might know for certain whether you have stroked or not.
Anyway it's just a suggestion and not a very appealing suggestion to you I'm sure!
I've mentioned this to you before quite awhile ago and I"d like to mention it again. So many of your symptoms also fit with the symptoms of an infection (viral and or bacterial). Namely Lyme Disease and Lyme Disease Co-Infections (i.e., bartonella, babesia, mycoplasma, etc.).
Lyme has become a worldwide epidemic and it is going largely undiagnosed. There are problems with testing and people really need to consult with a doctor who specializes in Lyme Disease in order to rule the illness in or out in a patient.
Lyme Disease IS a problem in Poland.
Lyme Disease and it's Co-Infections is also seen ALOT in people who have heavy metal poisoning.
You don't have to remember ever being bitten by a tick and don't have to get that bull's eye rash that everyone talks about. And people can still test negative on the blood tests and still have active Lyme Disease. Hence, the need for seeing a Lyme Literate Doctor for assistance in making an evaluation.
Lyme Disease is frequently misdiagnosed as chronic fatigue immune dysfunction syndrome, Multiple Sclerosis (MS), ALS, Lupus, Rheumatoid Arthritis, Bi-Polar Disorder, and more!
I'm not a doctor and I'm not saying that you have this. But I just wanted to share this information with you. It might be worth getting this ruled out. If, by some chance you do have Lyme and one or more of its Co-Infections, then treatment is needed.
If you're interested in trying to find a Lyme specialist in Poland, let me know. I think I found a few links a few months ago. One of the links was to a European bulletin board/Forum and they might be able to help you in locating a doctor to help. if you'd like to see a list of the symptoms of Lyme (particularly the neurological symptoms), I've posted them in the Lyme Disease section of the Herb Allure Forum here.
Also, if it would be easier for you, I'd be happy to paste the symptoms here on your thread, just let me know. I didn't want to hi-jack your thread with Lyme stuff unless you wanted to see it.
Anyway, I hope I haven't made you feel worse with these suggestions, jinx.
I'll be thinking of you and praying that you'll find relief, dearheart.
Sharon
p.s. AFter over a decade of searching, I was diagnosed with Lyme Disease in November, 2007. I also have Mycoplasma, Bartonella, possibly babesia. I still need to have further testing done. I"ve got a long road ahead of me, but I'm glad that I some answers. And like you, I am also mercury toxic.
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Re: Another "brain attack", please help!
#31397
02/02/08 11:45 PM
02/02/08 11:45 PM
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Sorry, I'm chiming in late on this. Jinx, I think the best thing to do is get medical help. The can run some basic tests on you. If you can tell them you can't afford to be there they should work with you. What you can do now assuming you may have had a stroke: The most effective treatment for stroke in the last few years involves the use of a drug originally developed for use in heart patients. This "clot-buster" , TPA has proven to be very effective if administered within the first 3 hours of the onset of the stroke symptoms. Recent studies have shown that if this drug is administered during the prescribed time frame that recovery in increased dramatically. Take what you can to thin the blood Like Aspirin. Garlic, vitamins E and C, bromelain, and the flavonoids (with rutin) all “thin” the blood. Use these in preference to aspirin Kudzu has anti-clotting properties. http://www.drugdigest.org/DD/DVH/HerbsInteractions/0,3926,552062%7CKudzu,00.html Don't overdo it with those. See if it helps you feel better. My best advice is to get help.
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Re: Another "brain attack", please help!
#31398
02/03/08 12:16 AM
02/03/08 12:16 AM
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with my current state they all do crap. and I'vbe tried minerals, ginkgo, vinpocetine, keep eating flaxseed oil, using cayenne pepper, b witamins, drinking massive amoints of green tea everyday etc etc. Another note, When I get weird I stop taking just about everything for a few days and let my system clear out. If you are taking high levels of zinc perhaps you might not be getting enough copper, etc. Some things you might take regularly might deplete your body of other things. You might be at a crisis point because of an imbalance. Might be prudent to stop everything for a few days (of course keep taking anything critical like thyroid pill, dr. prescribed heart meds, you get the point) and give your body a chance to rebalance itself.
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Re: Another "brain attack", please help!
#31402
02/03/08 05:12 AM
02/03/08 05:12 AM
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Freshman Member
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Joined: Nov 2007
Posts: 4
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With the pressure in your head plus all the other symptoms I would suspect you have an infection that's spread to your brain. And that you most need antibiotics. Do you have a stiff neck as well? Here's an article about Lyme meningitis causing stroke. http://query.nytimes.com/gst/fullpage.html?res=9C0CE1DE153FF934A2575BC0A966958260Lyme meningitis is not the same as the other kind of meningitis, so it needs to be treated with different things. Until you can see a doctor who knows about Lyme you can get Colloidal Silver -- which kills all types of bacteria, over the counter. Sovereign Silver appears to be best. The herbs Andrographis and Resveratrol are specific for brain inflammation and headache. It sounds crazy that herbs can help something so severe, but in my experience they work much better than antibiotics. Stephen Buhner recommends them in his book Healing Lyme. I've had this type of meningitis many times without knowing what it was. It's incredibly miserable, and dangerous. And most doctors have no clue what it is. The pressure for me was usually worst in the back of the head. I had an MRI when it was like that and nothing showed up, either. My doctor was merely going to prescribe muscle relaxants, but I went to a alternative medical clinic and tested positive for lyme. I'm sorry you're suffering so much. Don't mean to be presumptuous with the information but what you're going through sounds so familiar. When I first experienced lyme meningitis the amount of pressure made me think that my skull was actually shrinking. My brain felt squeezed. But now I know that it was actually my brain SWELLING.
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Re: Another "brain attack", please help!
#31404
02/03/08 03:38 PM
02/03/08 03:38 PM
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Master Member
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Joined: May 2006
Posts: 326
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Hi Jinx, I’m sorry I didn’t get back to you earlier. My computer mouse broke. Anyway, as I said in my post above if I were you, I’d go to the hospital and get checked out for infection and stroke. You could have a viral infection or a bacterial infection that is causing these symptoms. It IS possible to have more than one thing going on here – you know you have the mercury problem, but you could also have infection going on. On the lack of insurance, could your parents help you out in paying for a hospital visit? The hospital might not be Lyme Literate, so if you get a negative result that doesn’t mean that you don’t have Lyme. Seeing a doctor who specializes in Lyme is the way to find out whether you have it or not. But the hospital can check you for other infections too – particularly viral infections and other bacterial infections that can cause the meningitis-type symptoms. Lymie mentioned on this thread about meningitis-type symptoms, I thought I’d share that I also have had meningitis-type symptoms from Lyme Disease. Anyway, here are some links to help you try to find a Lyme specialist. I’ve included so much in case one reference doesn’t work out you can try another. This is a discussion board. I haven’t joined it. But it is a European discussion board and they might be able to make a good recommendation to you for a Lyme doc. http://health.groups.yahoo.com/group/EuroLyme/ This is a link to a good website on Lyme. Scroll down to the Resources section and you’ll see a section on Poland. When clicking on the section some info comes up with an address. It’s in Polish so I can’t read it. But perhaps they could recommend a Lyme doc to you. http://www.lymeinfo.net/international.htmlThis website (CanLyme) is very helpful as well. This website has information about a Lyme Conference that was held in the UK in 2005 (I had to use the site’s search feature to find this). Listed on the roster is a geneticist from Poland. Dr. Beata Wodecka. Perhaps you could contact this person and ask for recommendations for a Lyme Doc. Here is the link to the CanLyme website, as well as a link to the http://www.canlyme.com/http://www.aaem.pl/pdf/10171.htmAnd, finally, here is a link to the Lyme Disease Association. They have a doctor referral section. I don’t know whether this includes international referrals. But I’m including this anyway. http://www.lymediseaseassociation.org/Doctor_Referrals.htmlMany Lyme Literate Doctors also know a great deal about metal toxicity. They tend to see a lot of people with both metal toxicity and Lyme and Lyme Co-Infections. And many of the Lyme Doctors are also well versed in evaluating patients for other types of infections – both bacterial and viral. Hope this helps, Jinx. Sharon
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Re: Another "brain attack", please help!
#31405
02/03/08 08:38 PM
02/03/08 08:38 PM
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Junior Member
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Joined: Jan 2008
Posts: 45
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Hello jinx
My name is Sergio, I'm from Spain and I've suffered what you are suffering. Reading yuor posts just took me eight years back when my hell begun, i was feeling bad, i was feeling tired, and one day i suffred my first attack, i felt something in my head, something was moving inside, i felt like i was going to lose conciousness, that i was going to die, I couldn't think, I was so nervous..., I went to the hospital they told me i had nothing, just nervousness, but I couldn't sleep in three days. These attacks repeated from time to time and after every attack I felt the most terribles headhaches I've ever had, I felt like nails crossing through my brain. Some time later I had a severe attack that make me lay in bed for almost two month, i could barely walk, or think, or do anything normal,... They take me to the hospital again, more tests, more machines, even a TAC of my head, but nothing, just nothing, they give me tranquilizers and take me home. Some other days My head began to feel more and more heavy, with a lot of preasure inside, sometimes focused on the left side, sometimes on the right, sometimes on the top of my head and sometimes in the neck, i was even unable to move my neck.
Now I know that it was my anxiety, my nervousness that was focosing in my head, what was causing this? mercury obviusly. Step by step I learn to notice when one of this attacks was going to begin and then I tried to control it by myself, a difficult thing but I took tranquilizers when I needed it (diazepam, alprazolam, lorazepam) worked well for me and then I was able to control it, sad but true. I haven't had those attacks for many time, until last weekend when (fool of me) i take some nac wich make my mercury to move and my brain go wild again, fortunately I could handle it.
I think that your brain pressure is what is called a tensional cefalea I had a lot of them, it is not the brain who is causing the preasure but the muscles around it. The easy way of getting rid of it is taking some diazapam or any othe muscle relaxant. Unfortunately after having tensional cefalea you will have one of the most terribles headaches, it is my experience.
This is my story I hope it can help you, if you think that I can help you in any way please ask me.
Sergio
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Re: Another "brain attack", please help!
#31407
02/04/08 01:42 PM
02/04/08 01:42 PM
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OP
Elite Member
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Joined: Nov 2006
Posts: 573
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hey guys, thanks for all your input.
can't answer detailed today to it, cause I'm still very bad, and in fact worse wirth my left hemisphere thing. I thought I was better yesterday (and actually feel more comfortable since yesterday) but today is much worse, can't thinkl feel like my left brain is filled, stuck, with cotton or something, I was talking to somebody on the phone about my insurance and wanted to ask about something but couldn't just utter it, and immediately hang up (the women on the other side probably thought I was some nuts or something), also wanted to pack in case I was to go to hospital and couldn't organize simple packing.
something is defientely seriously wrong, I would have been in the ER today if it hadn't been for the insurance thing I couldn't deal with.
What's interesting is that yesterday I had a slight fever, and in the afternoon when I felt better I checked my temperature and it was down. so maybe it is some sort of infection. but still fear it's some sort of stroke thing.
can't think of more to write just want to get to hospital asap.
thanx again all of u.
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Re: Another "brain attack", please help!
#31410
02/04/08 02:56 PM
02/04/08 02:56 PM
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Master Member
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Joined: May 2006
Posts: 326
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There are others ways to check for infection then MRI's. Some infections that can cause symptoms in the brain don't even show up on MRI's. But the bloodwork and any other type of testing they do can l show infection. And there are different types of "MRI's" too. Some are more detailed then others for the brain.
I'm not saying you don't need an MRI. I'm just saying that there are other things they can do IN ADDITION to that.
Perhaps I'm not remembering correctly, but I thought some months past you posted and said that you felt like you'd had some type of seizure. You said that's what it felt like anyway. I'm sorry I don't remember when you posted that!
Tell the doctors your symptoms and let them decide what tests they think need to be run. See what they do with it all. Ask questions along the way.
If you tell the doctors that you feel that all of your symptoms are from your mercury exposure then you might not find out whether there is anything else going on.
Doctors can be very difficult to deal with, I know. They can make incorrect assumptions and poor judgements about us that are not true. Sometimes if we try to leave diagnosis possibilities open this can cause a doctor to rise to the occasion and do a fabulous job. Other times we're just left diasppointed. But I think it's worth trying right now, don't you?
Perhaps you could mention the mercury exposure but say, "I'm wondering if there is something else that is causing these symptoms. What else could this be?" That way you are giving them information but not telling them which diagnostic path you think they should remain on.
I feel just like you, Jinx, about doctors. I don't like them very much because I have been let down by them many, many times. I just felt that your symptoms warranted being evaluated again in case you had something urgent that needed treatment.
If you decide not to go that route and not to go to the hospital then there are other types of doctors you can try to get help with. Those Lyme Literate Doctors can be helpful in evaluating infections, for example.
It's too bad that it takes so much work for us to get answers and help. It shouldn't have to be this way. And those of us that need the MOST help are the people who are the MOST ill. Feeling so sick and having to work so damn hard to get diagnoses, help and treatment at a time when we're lease capable of handling the job.
It's not fair and it shouldn't be this way. But no one is going to be as passionate about your health as you are.
Anyway, I don't want to complicate things for you, my friend.
These are just suggestions. You do what you think is best.
And let us know how you get on, ok?!
Sharon
p.s. Yes, I'd tell them that you've had cognitive problems. Cognitive problems can be caused by lots of things, including infection.
p.s.s. They might already know about the previous MRI. But I don't think they are relevant today. You want a new start for diagnosis. If that means they start all over again with testing and looking at you then all the better.
You are not crazy and you don't need psychiatric help. There is something causing these symptoms in you. I just thought it would be worth ruling out infection, that's all.
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Re: Another "brain attack", please help!
#31411
02/04/08 02:57 PM
02/04/08 02:57 PM
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My personal OP for what's worth... doctors are great at fixing things when you have had an accident... but ask them to diagnose something like this and they fail 99.9% of the time.
If it were me... no matter the pain level... I have been there with migraines and numb head, truly numb to the touch and a days upon days of migraines in combination with it...
the only thing I have found that really works for major brain aches is feverfew (#1 many times over), lots of (filtered tap, not bottled) water, fresh greens and salads and colon cleansing. The liver flushes are also great for making your head feel wonderful. Thing is, it's not all in your head, a lot of it is in your butt and keeps poisoning you over and over unless you take drastic assertive action to unclog and dump it. I get the worst headaches when I'm constipated. It took me years to make the connection... don't laugh it's true.
If i take prescription meds or even aspirin for a headache i get about 3 hours of relief and then it all comes back with a double whammy for days upon days. feverfew works without side ffects, it's a very effective blood thinner. You may have to take it for a full 2-7 days to get it going the first time but nothing compares for headaches. combine it with calcium and magnesium for muscle aches or menstrual cramps, it'll knock those out within 2-3 hours..
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Re: Another "brain attack", please help!
#31414
02/05/08 09:11 PM
02/05/08 09:11 PM
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Master Elite Member
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Joined: Jun 2006
Posts: 4,178
NZ
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Jinx, this has happened to you more than once. I think people have tried to suggest almost anything and everything to help, but there comes a point where we run out of answers. It is a feeling of total helplessness.
What happened last time this occured? Somehow you got back to a bit more stability.....last time I seem to remember it was after some kind of cleanse you did - enema? Everything went crazy after that. Then after time, things got a touch more stable. This time it's another cleanse you did and possibly the garlic.
Another time it was cilantro that messed you up. I think these things are proving very very risky for you (garlic, cilantro, cleanses). You took ALA this time, but you stopped after two doses....this is very risky. On top of the reaction you've had, you don't need to risk making anything worse.
If you're going to start a round of ALA, you must continue to take it around the clock for about 3 days. Stopping after only a dose or two can make matters worse.
I wish I could help Jinx, but I cannot tell you how many times I was in dire situations with nobody to get me back out of it. I just laid in anguish in my room time after time and still do. Once a reaction like this happens, there is little to take to be able to just fix it.
Frequent DMSA can sometimes stablise a reaction, some people find algin helps. I am trying to think what can help you with this and it is very hard. I am scared of making a dire situation even worse.
It is horrible that people with this are left to agonise on their own for the most part. This is what this stuff can do and when you do ANYTHING wrong at all, even innocently eating something or taking something that might mobilise it, you can be totally tortured beyond belief.
garlic supplementation did this to me twice. Though I believe some of that is due to internal infection of some kind reacting with it. Possibly weakened barriers that are allowing things to happen that might not normally occur. But I sure got hurt by it.
Yet at one stage I coudl take it and do really well. It helped me. What the heck happened? I wish I knew. Sadly once a reaction like that happened, I had to suffer it. DMSA did actually eventually help me to some extent, but I had to keep using it.
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Re: Another "brain attack", please help!
#31415
02/06/08 06:57 AM
02/06/08 06:57 AM
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OP
Elite Member
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Joined: Nov 2006
Posts: 573
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hey thanx bex,
unfrortunetely no, a reaction like that has never happened before , it was always cognitive, but this is bigger, I've never had so much pressure in my brain, and aching head , plus cognitively feels completely different. plus it's only one side of the head so the more possible it is that it's neurological.
as dor that enema incidient - i still haven't recovered from it, just got slight improveent.
and we don't know if garlic caused this or what.
so anyway I am going to go to hospital today, that's what the fu.cking doctors are for I think , dont care what they say 'it's all in my head' whant myself examined period.
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Re: Another "brain attack", please help!
#31416
02/06/08 12:19 PM
02/06/08 12:19 PM
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Edta chelation gave me major headaches. Too much dmsa gives me headaches too.
It's one reason why i eat cilantro. cilantro makes the chelation headaches go away.
my wager... you will be diagnosed with a migraine headache. they will give you a prescription to help that. The prescription will help a little bit for a day or 2, maybe several hours. then you will wake up in the morning feeling fine untill you start moving around and then your head will feel twice as bad as before.
migraine meds are famous for that scenario.
migraines are very serious no fun things. They can steal years from your life. I suffered with them for several years, not constantly like some people do, but on a regular basis, about every three weeks, for 3 days each time. 3 days of non-stop excruciating pain, 3 days flat on back in bed like a zombie.
I finally got them to go away with feverfew a couple years ago. chelating and eating cilantro has also helped. Chelating without eating cilantro brought them back for a bit. The colon cleansing, parasite cleanses and liver flushes also helped.
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